Being Fair?

The boy has been breezing through this year with high marks in all areas ... with the occasional lapse in good judgement when it comes to "hand placement". As in "not keeping them to himself".
My official stance on it has to kind of just take it easy in that area. I mean, I've seen the other boys in his class, we've gone to a party where all the boys in his class attended. Brogan was by far NOT the worst behaved. Infact, he gives them PLENTY of opportunities to back off before his hands start flying.

One of the E.A.'s in his class commented that I'd hope it'd be fair when it came to punishment and wasn't it a shame that it's not?

All I could do was snort and tell her since the day I discovered Brogan is Autistic all thoughts of "Fair" have been far from my mind.

I'm realistic. I know people look at "special needs" kids differently.

I could easily have been blamed for such things myself.

They recently tested all the kindergartners in their math skills.

The results made me cringe.

The "test" had 18 questions on it.

He scored 6/18.

ONE MORE than he needed in order to get tutored.

Great. Just great.

They're all concerned because he doesn't understand the meaning and placement of words such as "more" and "equal to".

Word concepts elude him

Give him a simple number equation and he'll get the numbers right every time.

But he needs to do more than grasp the concept of numbers.

He needs to know how WORDS work with it.

Great.

Yet ... they won't actually DO anything to help me.

Just bring the problem to me and say, "Fix it, or he'll fall behind."

Well, scr*w you.

They have the resources. They have the experts.

But I have a whole lot more determination than you do.We're going to make you all look like a bunch of baffoons.

Just see that he doesn't.

'Bout Time

The other day my dad called me for an update on Brogan.

I know if he's calling for an update it's been a LONG time since I updated his blog.

First of all: Thank you.

Thank you Mom, Pat, Kari, Tina, Dawn, Jenie, Dad, Sarah and Curtis for donating to out cause. You all rock. With your donations we met and exceeded my goal by almost 100%. Next year I'll remember to up my goal.

We didn't actually walk in the walk as the amount of people absolutely pushed Brogan past his endurance point. He started chanting, "We've gotta go. We gotta get outta here." Over and over again as we were milling through the people waiting for the walk to start. Then started struggling to get away from me when I tried to calm him down. So instead of doing the walk we wandered through the exhibits. It was actually a really good way to do things. We still got to participate, meet new people and find more resources ... but didn't have to deal with the crush of people.In accordance with my desire to get more involved and more proactive, I also agreed to allow Brogan to get involved with a sleep study the Texas Children's Hospital in Houston is conducting.

In order to do this I had to take Brogan off his liquid Melatonin for two months for a "complete wash out" to give them true readings. I only did it because I hope with the results of these studies other parents will have questions answered sooner than mine were and get "good" sleep a whole lot earlier than I did.

We went down for a full evaluation of Brogan in late November. They obviously don't want children who are not Autistic participating in the study, so they have to screen the children for "real" candidates.

We met with a child physcologist who specializes in Autism. She put him through a battery of tests that were trying for me and a bit frustrating for Brogan. Not harmful in anyway, just hard for me to sit back and not help him out.

I guess you'd say he "passed the test" as he was admitted into the study. Woohoo (?)

The study itself went ... well. We were put into a dark (the only light being a tv) hospital room for 25 hours and his Melatonin levels were monitored through his saliva and urine. I think it can safely be said that HIS melatonin levels are zip while MINE are working just fine.
We played games, drew pictures, read books, watched tv, ate ... I have never been more thoroughly bored in my entire life.

Brogan put up with it way better than I did.

I was stir crazy by the time they released us.

I Never Do This

This year I decided our family (at least the kids and I) are going to get more involved in the Autism community and awareness.
I've been sitting in the wings for a little too long.
Admiring and advocating the work that is done.
But not putting any real effort in myself.

Our first endeavor is going to be the Walk Now for Autism event being held on November 14th.

I am not one who easily asks for help.

If at all possible, I will get something accomplished by myself simply because ... I guess I hate the humility that comes with admitting that you just can't do it alone.

I also hate the possibility of rejection.

That I think hurts more than getting to the point of being able to ask for help.

For Brogan. For The Cause, I've swallowed my pride and bucked up against the possibility of having no financial support and sent out hundreds of emails.

Hundreds.

If I know you, if I can find your email ...

I've sent you an email asking for your support.

Cause this is something I believe in.

I don't believe so much that there is a "cure", but I surely believe there is a world of help out there that can be given if enough attention is brought to our cause.

So come on, people - let's make some money and make a difference!

Brogan's counting on you! (haha, just had to throw out the "tugging on the heart strings" line)

Disgruntled.

This word sums up how I am feeling about what is happening with Brogan's school year thus far.
I am so tired of hearing from his teacher about how she "just doesn't know" what to do with him.
SERIOUSLY?!?!?
Are you, or are you not suppose to be the professional in this situation?
Do you or do you not have all the resources you could possibly need at your finger tips (internet) or just down the hall (the districts Autism specialist)?
Are you too lazy to put in a little bit of work?
Last time I checked you were the special education teacher.
This is your frickin job.
WHY oh WHY am I the one doing YOUR JOB?!?!

Now that I have vented somewhat, I'll give you the back story.
I have expected Brogan to get a little bit more rowdy as he gets comfortable in his routine, with the teachers and with his peers.
This is just Brogan.
He's a little bit excitable and high spirited.
Not a bad thing, when you direct it towards creative endeavors.
Can be slightly frustrating if you let it get out of hand and have to deal with it over and over and over again.

His teacher who seems to be a very sweet lady has begun to have continual complaints about Brogan:

"We're getting so tired of having to tell him to stop hitting we're going to just make up signs and point to them when he gets out of hand."
"We tell him all the rules before he goes out to recess, but then he picks something else that we didn't cover and starts doing that."
"He doesn't respond to the color code, he starts laughing when we change his color!"

Ooooooh k.

Last week it escalated out of control.

He started choking kids.
Kicking.
Throwing things at them - hard.
Sucker punched a kid. On purpose.

After two days of him "going to red" (the third color down on the "behaviour" chart) he woke up and informed me that he wasn't feeling good and he was staying home from school.
I asked him if his head hurt? No. Stomach feel bad? No. Checked him for a fever. Negative.
My son who prior to this year loved school. I had to make him stay home when he actually WAS sick. Any bells going off in anyone else's head?
I sat down with his teacher and she told me about the times he was acting out ... and still I wasn't making the connections. I felt very frustrated and panicked. I didn't know how to help my son. If they were following the same guide lines his teacher had set up for him last year - what had changed so much that THIS was who my son is now?
What was going on that he didn't know how to handle it and was lashing out?
Who was falling down on the job?
Was it me?
What could be done!?!

I contacted our dear, much loved Kimberly and told her about what was going on. Expressed my frustration and fears.

Her answers were simple.
Basic.
Uncomplicated.

Is he being over stimulated?
Does he know he can take a time out?
Are they reminding him of the rules before he goes into high activity areas?
Are the other kids aware that Brogan needs his space?
How much supervision is really being provided?

It's not that I forget that Brogan is Autistic ... I just take it for granted that people in positions of authority and education in his life are also VERY aware of this and take that into consideration when placing him in situations.

So I stopped "doing" so much around the school and started "watching".

Oh.
My.
Heck.

I don't even know where to start.

They are essentially treating him like any other student, who misbehaves. No visuals. No breaks. No breathers. Extra supervision only in the classroom - where he doesn't need it anyway!

His A.R.D. (Admission, Review, and Dismissal) was (legally) to be tomorrow, but the school diagnostician ... oh, at this point WHO KNOWS?!?! All I know is I have a legal pad full of notes that I will be taking into this meeting.

Heads will begin to roll.

Things will change or I am going to be one pissy mom.

Six

So the little man turned six.
This year he had an opinion on everything.
The location (which changed day to day).His presents (McDonald's Play Food).The people he wanted to come (Just the Edwards girls. NO BOYS!).What kind of cake he wanted.

I Did.

Today when I picked Brogan up from school I noticed he was playing with a new car. I asked him where he'd got it. Being the literal being he is, he answered, "School."
Me (thinking, duh, Krista - ask BETTER questions!) "Who gave you the car Brogan?"
Brogan (totally distracted with car), "I got it at school."
Me, "I know you got it at school, that's where you got it. The place. Who is the person you got it from... Who gave you the car, bud?"
Brogan, "I did.
Me *sighing* "I know you have the car ... but who gave it to you at school."
Brogan, "I did."
Me (a little exasperated, feeling like I was doing the Who's on Third schpeel), "You gave you the car?"
Brogan, "Uh huh"
Dropping the topic, I asked him about other things that happened today.

When I got home, I shot off an email to his teachers asking if either of them knew where he'd got the car and who I needed to send it back to.

I got an email back explaining that Brogan earned the car through good behaviour. So he literally DID gave it to ... him.

Silly mom.

Web Whiz

Before I get into the actual purpose of this post I'll do an update on school ....
Brogan started school three weeks ago and has taken to his new school and teachers like nothing is new. He misses his Ms. Kimberly and asks about her frequently (whom we give him his fix of through In Home Training and "pool parties" at her house) but there was relatively little transition or adjustment needed.
He tests high in several areas, which surprises no one but his teachers. I guess they expected him to be smart - just not this smart.
His biggest struggle is still interacting with other children in an "appropriate manner". However, he doesn't lash out nearly as much as he has has in the past. So we take what we can when it's offered and keep working on the "goal".

Back to him being smart. The kid is ridiculous. You have to be careful what you do around him cause he's ALWAYS stinking well WATCHING.

The other day he asked me to find a specific video for him to watch. I went to Google, typed in what we were looking for, scrolled through the options and picked the one that seemed most appropriate.

My mistake.

Or triumph.

Today I came into the living room and found him on a site that I have not book marked or previously visited. I looked in the top right corner and saw written in the "Google Search" box a description of what he was looking at. I called out to Jerry and asked him if he'd done the search for Brogan. Answer came back negative.

Brogan had done that himself?

Geez-la-weez!

Honesty, Best Policy?

Yesterday we were swimming at a beautiful little hole in N.M.It really was great.
The water was not too cold, but not warm either.
There was a great sandy beach.
Not too many people, as it was a weekday.

It doesn't take many people to evoke honest observations from the boy, though.

There was a very large white man, wearing light gray shorts, who was spending his time floating face down as he observed the lakes bottom through goggles. As Brogan scooted around him once he said, "Excuse me, Manatee, Excuse me."

I chocked a little, then had to turn my face away and pretend I didn't hear what he said so I didn't start laughing out loud.

Problem being, for the rest of the day every time I saw the man that's all I could think!

Brogan pegged him really well.

Really Well.

Ranger-holic

It's a fact that the boy loves to go on rides.
After driving for three days straight to Canada, he's ALWAYS willing to go for another ride the next day.
It slays me.

However, he has a new addiction.
Not being driven.
Driving.

My mother's husband somewhat recently purchased a Ranger for random hauling of ... stuff around their place.

If I thought he couldn't get enough of being driven around, the need to drive is nearly an obsession.Don't let him near the gas pedal though, he's a maniac!

Then He Slept

A couple of months ago I took the plunge and started giving Brogan Melatonin. Seriously the best decision I've ever made. Ever. Well, okay. Maybe not the best best. But it's WAY up there.
In any case, I alternate how much I give him, how often I give it to him and on what days I give it to him so his body doesn't build up an immunity or dependency. I would have thought this was a good idea. Till the other day as he flung himself restlessly around on his bed on one of the nights I didn't give it to him and finally sat up and called out, "Vitamins please mama!" It's funny that even though I have never said to him, "These little vitamins help you sleep better, buddy, don't you LOVE them?" He has KNOWN. He has known the source of his restfulness and now yearns to find it every night.
I can understand why. Imagine being Brogan. He has never slept a full night through. Ever. And this time when I say ever, I mean ever. Can you imagine how that messes you up, how you feel inside, what your brain must be thinking? Then your mother starts giving you little magic vitamins an hour before bed and Wa-Bam! You are experiencing a restful nights sleep. For the first time in almost 6 years. Your entire life. Poor little man.
I now give him Melatonin every week night, the "break" is the weekend. I'm not sure how we'll handle summer vacation. We'll see how it goes.

Ain't He Sweet

And a little "survey" B-man filled out for Mother's day:

My Mother likes to Draw (no, not really. That's all you, baby.)

My Mother is 29 years old. (So so close. 30)

My Mother's favorite food is Fried Chicken Milk (..... what is THAT?)

My Mother's favorite sport is Blow Bubbles (hahhaha, oh, okay)

My Mother's favorite color is Gray (I have no idea where he got that)

My Mother's name is Krista

I love it when my Mother drives (you don't say?)

My Mother is Mom (nicely put, son)

My Mother is good at Reading

My Mother and I like to drive (do I sense a trend?)

My Mother like it when I eat apple pie (he's clearly delusional)

My Mother is great because I'm Happy (can't argue with that logic)

My Mom and I play at home

My Mom and I play link and logs (Lincoln Logs)

My Mom and I eat donuts (he's so subtle)

My mom and I go to Sea World (ummm ... once, last year)

My mom and I read books

My mom and I watch moveys (movies)

My mom and I like to drive in the truck (okay, okay! I get it!)

Leaps and Bounds

The boy is growing so fast.
He's learning so much.
He's getting so smart.
It's hard to keep up.

He's reading, or at least attempting to read everything he can get his hands on.
Which is some situations isn't so helpful.

The Chuck E. Cheese up the road has been under renovation for a few months now as they expand. They've remained open, just had patrons using a different entrance. However, since the front of the building and the parking lot is all torn up ... I've told a slight lie as we've driven past and he's shouted with glee,

"Go to Chuck E. Cheese!"
My reply has been,

"Sorry bud, look, it's closed."
Being a child of kind of sound reasoning, he's believed me.
His mother.
The fudger.

However, (darn you, CEC!) they recently hung up a banner across the front declaring,

"OPEN! Door on Side!"
He can read any and all four letter words.
Frick.

He's also become more aware of others.
If he sees me laying in bed without covers on (in my case, it's usually on purpose ... but I'm not going to point that out to the boy) he'll rush in, pull covers up all around me. Pat them down and exclaim,

"There you go!"

"Thanks buddy."
"You're welcome."

He loves telling people "You're welcome." I think he feels it's a public service because he certain gets a lot of joy out of it.

When he gets himself a drink, he will more than likely pour his sister a drink also. Some days I'm not too sure this isn't out of

self
preservation

so he doesn't have to share. I'll give him the benefit of the doubt though.

He's less terrified of birds ...

at a distance.

We went to the Fort Worth Zoo the other day and he sat for a good 20 minutes just watching the swans. They've built up a nest and laid an egg or two and he finds himself enthralled with their nest protecting, waddling and squawking at each other.
He loves being out. Going places. Doing things. Which is a joy to me, since neither his sister or father

ever

want to go

anywhere.

Oh Sure

I may be the one to drive him there, but I am surely not the one he wants to spend his summer with ... (he drew the picture, I wrote in the names as he told me who they were)(click on it to enlarge it)

He does not lack imagination, that's for sure!

Independence

I have never really been one of those mother's that mourn the passing of my kids baby years. The older they get, the more I like them. The older they get, the more fun it is to be with them.
As they get older, they also get more independent, which in my books is fabulous.
This week, the boy took his independence to another level. When he's hungry for a snack, he usually hits the pantry or fridge, hunts around and finds crackers, popcorn, fruit snacks, pickles, apples ... whatever it is he's got a hankering for. The other day, I guess those options just weren't going to cover what he was craving. So as I watched he grabbed the bread, peanut butter and a butter knife and placed it all on the island. Then he found his step stool and pulled it up to the counter. He then proceeded to make himself a very thick peanut butter sandwich, all of which he ate.
Next step?
Microwave!
*If you'll click on the picture, you can see the picture he drew on the white board ... "Brogan made a sandwich!"*

Let Me Make Myself Clear

I have NEVER claimed Brogan was subtle. Not even once did I even hint at it.

He's been telling me lately that he wants to go to the zoo.
Most days are just not a good day simply because he has school.
However, that does not deter him from asking time and time and time and ... again.
I think he believes I have a communication problem because when ever he asks for something more than once and I've said "no" or "not right now, buddy"
he will go
and
draw
a
picture.
Like, "Obviously you just don't understand me
or else I'd be getting what I want right now.
Let me draw you a picture to make my demands
a little clearer."

This is his response to not going to the zoo in the last month.And here's what he gave Jerry while I was gone.
You'll notice no pictures accompany this one.
Just his demands.
Straight out.

Laundry

My sister in law Jenie has a very specific way of doing laundry that her mother taught her. This summer while I was at her house for six weeks I tried to keep up with her way of doing it, as I was at her house and wanted to respect her housekeeping methods. I began to really enjoy it, I liked the order of it, knowing what colors to wash with which colors, ect. When I got home from Canada I decided to implement her method in my own laundry room - with a twist. I want my kids to feel as responsible for their own stuff as possible, so I decided to have them start sorting out their own laundry into the right bins and then put away their own stuff. To help them remember which colors went in which bins I cut out strips of construction paper, laminated them, then taped them behind the respective bins. Some of this desire comes from my own dislike for house work, laundry especially - but any way you cut it, I got the kids involved.
The kids, especially Brogan, really enjoy sorting laundry. He loves deciding what color is the predominant color in the clothes, tossing them in and seeing the basket fill as he does his "job".
It may be too early to be worrying about the life skills they'll need when they move out, but I figure you can never be too prepared.

Compliments

Some days the boy is WAY too sweet.
It almost brings me to tears.
Alright it DOES bring me to tears.
What's it to ya?
The other day as I was talking on my cell phone I had to plug it in while in mid-discussion and the best place was beside my bed. So I grabbed a pillow and made myself comfortable on the floor as I continued talking to my mom. Brogan, being my constant shadow, sees me laying on the floor. Looks me up and down and quickly runs into the living room and brings back a blanket to cover me up with.
I smile at him and say, "You're a sweet boy, Brogan."
He smiles back and proclaims, "YOU'RE a sweet girl, mom."
Awwww.

This morning as we was sitting at the table working on his letters (keeping them ON the line) he looked over at me with his dark eyes just a twinkling and softly said, "I love you SO much."

Gosh darn, that kid.

Revelation

In general, I don't think about how smart the boy is.
But there are moments that give me flashes of insight that leave me a bit stunned ... then murmuring to him as I stroke his soft blond hair, "You're such a smart boy, Brogan?"
To which he laughs and shouts, "Yep!"
Yesterday Brogan was doing whatever it is that Brogan does when he's entertaining himself when his head popped up and he asked,
"Auntie Jenie Hamon, mom?"
"No, Brogan. Her name is Auntie Jenie Jones."
Silence.
Then, "Auntie Jenie Jones, Lincoln Jones, Hanna Jones, Emma Jones, Li-ly Jones, Oh-livia Jones ... Uncle Michael .... JONES!"
Pauses, tongue between teeth as he draws another master piece.
"Auntie Dawn Hamon, Uncle Gary Hamon, Al-ain-a Hamon, Rhys Hamon, Terina Hamon, Ter-e-vor Hamon."
I love how he figured out who belonged to who, how all the kids that belonged to that parent had that name. Not OUR name, but the parents name.
I know, I'm biased.
But seriously.
Totally impressive.

P for Penis

Wow! What's with the title, Krista? Seriously, tone it down!

One of Brogan's favorite time wasters is going through the alphabet with us alternating letters and what starts with it,
A is for Albatross
B is for Baritone
C is for Cougar
...
You get the idea.
He's a smart kid. If you give him a word, he can almost always tell you what it starts with if not how to spell the whole word if it spells the way it sounds.
Lately I have taken to flat out telling him to
"Stop playing with your penis, Brogan."
It makes Jerry cringe, but seriously - what am I SUPPOSED to call it? A wee wee? A pee pee? It just seems rather ridiculous to soften it for him when I give it to Rhiannon factually.
Soooo ...
Today we're doing the ABC's
...
O is for Orangutan
P is for Penis
A small smile pulls at his lips and I see him darting looks at me out of the corner of his eye.
Bugger.
Q is for queen
Top that PUNK.